Neuro Advocacy

 


Our First Neuro Advocacy Project:

The Brain Science Behind Texas's $26 Billion Crisis—And a Legislative Solution

The Next Project:

Protecting Every Texan's Right to Standard Medical Care

Our Mission

The Neuro Advocacy Legislative Project is a human rights campaign fighting to end disability-based medical discrimination in Texas hospitals—and ultimately across the nation. We are pushing for legislative protections that guarantee equal access to antibiotics and essential medical treatment for all patients, regardless of disability status or perceived "quality of life."

The Crisis We're Addressing

Right now, hospitals are denying standard medical care to disabled patients based on subjective quality-of-life judgments rather than medical evidence. My husband Danny, a US Army veteran with a proven infection, has been denied antibiotics by an Austin hospital that is sponsored by the Catholic Church because doctors documented that treatment "wouldn't reasonably change quality of life" due to his disability.

If this can happen to a veteran with a spouse advocating 24/7 with medical evidence in hand, it can happen to anyone.

Why This Affects YOU

Disability is not rare. It's inevitable for most of us:

  • 1 in 4 people will become disabled before retirement age

  • 54.6% of Americans will experience a work disability between ages 25-60

  • Over half of Americans currently have a neurological disorder

  • 1 in 3 people globally are affected by neurological conditions

When you have a stroke, when your parent develops dementia, when your child suffers a traumatic brain injury—will doctors decide YOUR life isn't worth saving?

Our Three-Part Solution

  1. Legislative Protections: Mandate equal access to antibiotics and standard medical treatment for vulnerable Texans at the state level, with federal expansion to follow.

  2. Patient Safeguards: Protect isolated, nonverbal, and marginalized patients from being denied care based on disability or quality-of-life discrimination.

  3. Hospital Reform: Relieve hospitals of external metrics-based pressure that incentivizes denying care to complex patients, allowing clinicians to focus on appropriate treatment.

The Bottom Line

This system could fail any of us tomorrow. Disability doesn't discriminate—and neither should our hospitals.

Every person deserves the same standard of care, regardless of how doctors judge their life's worth.

Join us in demanding that Texas—and America—protect the most vulnerable among us. Because today it's Danny. Tomorrow it could be you.